With Christmas upon us, Cora's view has changed a bit. I'm kind of jealous, I love the Christmas tree lights and would truly enjoy laying next to them for a while. Her resting room/living room just feels so peaceful now.
Cora has had a rough few days. Her pain at times is unbearable. I don't feel any support from her surgeon's office. I will leave a message for the nurse and not receive a call back for days! Refilling her prescriptions has been a nightmare and we are now relying on leftover painkillers from Steve's surgery last spring. There's no therapy ordered, no follow up phone calls and no in-home nurse to come and care for her. I feel as if they rebuilt my child, patted her on the head, and sent her on her merry way. I'm very frustrated. She is bored off her rocker. She hasn't been able to walk farther than the mailbox or stand longer than 10 minutes for the shower. She would kill for a quick run to Target or a hot cocoa run to Starbucks. It's hard to concentrate on homework when she is doped up so much. However, she has been able to make up a couple missing assignments. Next week, the siblings go back to school, leaving us with each other and a very quiet house. We hope to get her up some more and tackle a bit more schoolwork. Maybe we will even get her some sunshine and fresh air. However, Cora is sleeping well at night. I do count that as a blessing! I haven't left her side. I've been sleeping on her floor for 2 and a half weeks. I'm really scared to leave her. Some nights she needs a listening ear, so I wipe the tears and try to comfort as best I can. Some nights we stay up late, giggling over movie quotes and dreaming about Christmas to come. Most nights I just tuck her in, smoothing down her crazy hair and kissing that beautiful forehead. It reminds me of her nights as a baby, me not wanting to leave her side...not trusting her to find peace the whole night through without me. Ive been reminded of my favorite nursery rhyme I would sing to my babies: Sleep my child and peace attend thee, All through the night. Guardian angels God will send thee, All through the night. Soft the drowsy hours are keeping, Hill and dale in slumber steeping. I my loving vigil keeping, All through the night. It's been two steps forward, one step back this past week. But at least that's progress! She is trying so hard to be brave. Thank you all for your visits and prayers. They mean so much.
1 Comment
Keri Taylor
11/28/2016 07:34:05 am
I am in your parents' ward in Eagle and have known them for many years. I have been praying for you since the surgery and hope you feel strength and comfort. You are doing an amazing job in very tough circumstances! My wish for you all is that this season feels more peaceful, sweet and meaningful simply because you won't be able to rush around or go many places with her. It must be hard for her to not be able to do things she usually enjoys during the holidays and for you as well. You got this and I will continue to pray for you all😀
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AuthorMy name is Kirsty. I am the mom of an amazingly courageous daugher with scoliosis. This is our story. Archives
June 2019
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