Cora had a couple highlights this week that we want to focus on! First, we had a couple dear friends come over and bring us lunch and stay to professionally give Cora a gel polish manicure. Now to the average reader that may seem silly, but if you are a 15 year old girl, or have ever BEEN a 15 year old girl, it's pretty awesome. Cora keeps telling me how pretty her hands look :) Cora can get up to switch rooms, she can sit up to play cards, she can stand to shower, she can even go up and down stairs. The hardest part has been stamina. She doesn't last very long at any of these activities. But Friday night was the Winter Dance Concert. She would have been front and center for most of the program. It was killing her not to be there. So, because she had had several good days in a row and I knew she could sit for the program I told her we could try it. I dressed her super warm, packed her in the car, and said a little prayer. Oy! My nerves! Man, look at that face! She was so excited to get out. She did great in the car, quite a change from the last car ride 3 weeks ago! Good thing the high school is only 4 minutes away though, I drove like a grandma. We got to the school and I literally drove up on the sidewalk to the front doors to minimize they walking distance she would have. Haha! She was so embarrassed. Love it! We got inside and one by one dancers came out of the classrooms and halls. "Cora! Cora!" It was so heartwarming to see how much she was missed. They all said the kindest things. But the best part by far was the surprise we had planned. The Dance Company was already on stage behind the curtain, listening to a motivational speech made by one of the mothers. When the speaker got to the part about "dancing for our loved ones who couldn't be here, especially our sweet Cora", Cora appeared through the heavy black stage curtain to greet them! Honest to goodness, I've never seen teenage girls FREAK OUT to that level. They all lunged at Cora to hug her!! But being the massively overprotective, highly nervous and cautious mother that I am, I stopped them short! DONT TOUCH MY GIRL! Okay, fine. Baby hugs were finally allowed and man the tears flowed!! Every one of those girls had to redo their makeup. It was awesome! Sitting in the audience after the surprise, Cora narrated to me every song choice, every difficult dance position, every costume highlight as if she was on stage with her Dance Co. I'm sure we drove the audience around us nuts but my girl was happy. Unfortunately, she paid for that outing. The next 4 days have been spent in bed with nerve pain and mounds of frustration. Cora is normally the happiest, silliest, most active person I know. To lay in bed for a month has been really, really hard on her. She was hoping to be back to school, hanging with her friends and picking up life again. But her body just isn't cooperating yet.
I feel so blessed that the holidays are approaching. She will pause for a while and she won't continue to get any farther behind, at least for the holiday break. The teachers and staff continue to be so helpful and patient as she turns in her school assignments slowly but surely. We keep holding to hope for the future and are eager to get her life back bit by bit. ❤️
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AuthorMy name is Kirsty. I am the mom of an amazingly courageous daugher with scoliosis. This is our story. Archives
June 2019
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